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julienneviuya replied to the topic Informed consent: What if Henrietta Lacks checked No for research use? in the forum Clinical Research Basics 7 years, 5 months ago
Every individual has the right to his or her own body, along with whatever may come from a study of it. In the case of Henrietta Lacks, she should have of course been given the right to refuse, as well as the right to fully consent, to the use of her cells in the name of science. If she had deferred decision-making rights to her family, they also should have had the option to decide yes or no. Had this been the case, it is possible that science would not have been at the point that it is now, but it would have been with clean conscience and ethic upstanding. It is a possibility that another individual would have had a similar set of cells with the same outcome, but more importantly with consent. Henrietta Lacks will live on, as she is immortalized through the research that came from her cells. She and her family deserved more than they were given in terms of money and recognition.