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Karen Immanuel replied to the topic Informed consent: What if Henrietta Lacks checked No for research use? in the forum Clinical Research Basics 6 years, 5 months ago
Informed consent in very very important and I’m happy to say that now a days, it is taken very seriously. Back in Henrietta’s case, I don’t even think she was given a consent form, she just went for cancer treatment but they took her cells for research and other discoveries that neither she or her family knew about until a generation or two later. In our times, if this were to happen there would be heavy legal charges against the researcher and the hospital/corporation housing the study. Patients have 100% right to choose what is to be done with their data/samples and they must be informed about it throughly before the study even begins.