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ec52 replied to the topic Informed consent: What if Henrietta Lacks checked No for research use? in the forum Clinical Research Basics 7 years, 5 months ago
While I understand the importance of Henrietta’s harvested cells brought to advancement of research and benefits to society, I believe her cells were taken without her consent. Her rights were violated, but there were few laws in place at the time to protect her an other patients in the same situation from cells being harvested without consent and tissue research performed from the common good. HeLa cells brought to the forefront the responsibilities medical researchers owned society, transforming forever, the way researchers gather information and collect samples from human subjects, and more importantly how modern tissue research is regulated. I agree with previous posts that patients reserve the right to choose what information can be leveraged for research. If today’s research environment Henrietta’s family should have received compensation.